Presented by Mia Dunn
Nancy Morris introduced our speaker for the evening. Mia Dunn joined the Arthritis Society Prairie Region – Manitoba & Nunavut as the Fund Development manager in September 2017. Mia has made many presentations to raise awareness about arthritis and the Arthritis Society as part of her out reach to the community.
The Arthritis Society is a national health charity, fueled by donors and volunteers, with a vision to live in a world where people are free from the devastating effects that arthritis has on lives.
Mia initiated her presentation by thanking the club for the invite tonight. Mia advised that she would be providing information about the structure and work of the society including a new initiative, the inaugural Childhood Arthritis Society Summer Camp.
Vision:
To live in a world where people are free from the devastating effects that arthritis has on lives.
Mission:
To invest in cutting-edge research, proactive advocacy and innovative solutions that will deliver better health outcomes for people affected by arthritis.
Purpose:
To embrace and empower the resilient spirit of people who live with arthritis, as we tirelessly pursue a future without it.
Arthritis is Canada’s largest chronic health condition and there is no cure. The disease affects the lives of over 6 million Canadians, that is 1 in 5. Nearly half of people over 65 have arthritis. Manitoba is 1 in 4. The Arthritis Society began 70 years ago with one very clear goal; to alleviate the suffering of people crippled by arthritis. Founded in 1948, the society has raised and donated $200 million to research. This is the largest single funder of all the organizations involved in funding arthritis research in Canada except for the Federal Government.
Of the 6 million people with arthritis in Canada, 5 million have osteoarthritis and 1 million have inflammatory arthritis. There are ~100 different types of arthritis in these two main categories. Osteoarthritis involves joints and is progressive while Inflammatory Arthritis is based in immunology and affects the whole body. Pain is the commonality between the two main types. There is a definite physical and mental side to arthritis. The Arthritis Society is here to help people manage this condition. It is estimated that by 2040 there will be 9 million people affected by arthritis in Canada. Most are female and any age can be involved. Most start having symptoms during their working age years. So there is a definite impact socially and financially. A report by the Arthritis Alliance of Canada estimated that osteoarthritis and rheumatoid arthritis costs the Canadian economy $33 billion last year in direct health-care costs and indirect costs such as lost productivity.
The Arthritis Society supports research. There is no cure, but research goes on to help find the best treatments and innovative solutions that improve the quality of life for those living with arthritis. The society also acts as advocates for those living with arthritis. They act as a voice to ensure that the any future national pharma care program will keep coverage for arthritis patients.
Solutions are sought to help make the best possible quality of life available for arthritis patients. A backpack program for children aged 10 and under diagnosed with arthritis. The backpack is specially chosen to ease joint strain, and it contains arthritis-friendly resources designed to help children and their families, including a plush bear with a removable warming and cooling pack. There is also an online resource called MediKidz Online. This is a colourful resource comic book giving kids (and parents) access to medical information they can easily understand.
One solution is the Childhood Arthritis Camp that works to allow children with arthritis experience a normal life at a summer camp.
In Canada, there are 24,000 children under the age of 18 years old that live with arthritis. In Manitoba that number is 900 children. This is the inflammatory type that is extremely debilitating. A lot of the children spend a far amount of time in hospitals due to flares of the disease. This leads to classes missed at school. They need infusions, injections and parents just are not willing to let their children go to regular summer camps because of the care needed over time. It would also be economically difficult for these families to send a child to camp. The parents need to be comfortable with the staff running a summer camp, that they will be trained to look after the needs of their children while at the camp. This is why Camp Limitless will open in Manitoba this summer. There are 5 other similar camps across Canada already. Any child with a diagnosis of arthritis can go to this camp. The older children will be leaders at the camp to assist the younger children.
Upcoming events:
- Walk for Arthritis. June 2, 2019 at Assiniboine Park – Lyric Theatre.
- Faces of Childhood Arthritis, April 11, 2019 at 5:30 PM, The Gates on Roblin 6945 Roblin Boulevard, Headingley, MB
Faces of Childhood Arthritis is re-imagined for 2019 as a camp-themed evening. Held at the picturesque woodland estate of The Gates on Roblin, this unique event will celebrate the joy of summer camp. From the menu to the entertainment and décor, guests will experience an evening reminiscent of those youthful summer experiences. Guests are invited to wear plaid to participate in the theme of the evening. Children aged 5 and older are welcome.
Reception 5:30 p.m., Dinner 6:30 p.m.
The event will include the opportunity to meet our incredible childhood arthritis ambassadors, who will share their stories. Dr. Kerstin Gerhold, Section Lead-Pediatric Rheumatology, will make a presentation about Childhood Arthritis and its impact on the child and family.
- Arthritis Talks: Nourish and Flourish, May 4, 2019 at Best Western Hotel. Free for the webcast and viewing parties. $10 for live sites in Calgary and Winnipeg.
The Prairie Region presents the first of a four-part National Symposia Series on Saturday, May 4, 2019. This educational symposium will provide people living across the country access to renowned arthritis experts in the fields of nutrition, physical exercise and medical cannabis.
Register for the live event in Calgary or Winnipeg, the viewing party nearest you or for the webcast presentation. There will be a hosted Question and Answer session following each presentation; in-person and online participants will be able to forward questions. After the shared Webcast, in-person attendees are invited to remain to hear a local inspirational speaker during lunch followed by a live educational speaker presentation in the afternoon.
Q/A
1.-Bob Antymniuk asked a question…..ABBA??
A. Yes???
2.- Is there a genetic component to inflammatory and osteoarthritis?
A.- Inflammatory arthritis, Yes there is a genetic component.
3.-Glenda Werbowski has arthritis, her grandfather had arthritis and her daughter has arthritis. What drug would you advise to use?
A.- Mia would not be able to give advice regarding treatment. Ask for a referral to a rheumatologist from your primary physician, if they are not able to take care of your pain issues. Primary care physicians do not get enough training in this area during med school.
4.- Jeff Kulilowsky asked if arthritis is an autoimmune disease?
A.- Inflammatory types are autoimmune diseases.
5.-Nancy Morris asked what type the children tend to get?
A.- Most common is inflammatory, Juvenile Idiopathic Arthritis.
6.- Iain Scott advised that there is a shortage of rheumatologists in the province. Is the Arthritis Society trying to correct this?
A.- Grants are given out to encourage study in rheumatology.
Individual must be within 5 years of their first academic appointment and within 10 years of their most recent graduate or health professional degree (or equivalent, in a field such as medicine, dentistry, rehabilitation sciences, nursing, pharmaceutical studies, veterinary medicine, etc.) at the time of the application deadline. The grant will cover 3 years of study with the University signing on to provide coverage for the additional 3 years of study. 6 years of studies. STARS
https://arthritis.ca/researchers/research-programs-awards/current-funding-opportunities/stars-career-development-award .
Iain Scott advised that Dr. Shelly Turner, Gimli MB. will consult regarding CBD Oil and pain management.
7.- Roh Goenka asked, #1: how much research is the Arthritis Society supporting?
A.- In 2018-19, the Arthritis Society has committed over $4.5 million to arthritis research and the development of researchers and clinicians.
Arthritis Centres across Canada
Dr. Ali Abdul Sater, York University: Stars Career Development Award
Dr. Linda Hiraki, The Hospital for Sick Children: Stars Career Development Award (funded through the Stop Childhood Arthritis Initiative)
Dr. Sarah Manske, University of Calgary: Stars Career Development Award
Dr. Susanne Benseler, University of Calgary: Strategic Operating Grant (funded through the Stop Childhood Arthritis Initiative)
Dr. Eric Bohm, University of Manitoba: Strategic Operating Grant
Dr. Mary De Vera, University of British Columbia: Strategic Operating Grant
Dr. Jaime Guzman, University of British Columbia: Strategic Operating Grant (funded through the Stop Childhood Arthritis Initiative)
Dr. Diane Lacaille, University of British Columbia: Strategic Operating Grant
Yann Becker, Centre de recherche du CHU de Québec – Université Laval: PhD Salary Award
Mable Wing Yan Chan, University of Toronto: PhD Salary Award
Luiza Grazziotin, University of Calgary: PhD Salary Award
Carly Jones, University of British Columbia: PhD Salary Award
Graham Macdonald, University of British Columbia: PhD Salary Award
Kevin Robb, University Health Network – Krembil Research Institute: PhD Salary Award
Suzanne Salti, Centre de recherche du CHUM : PhD Salary Award
Brian Rai-Ling Wu, University Health Network – Krembil Research Institute: PhD Salary Award
Meital Yerushalmi, University Health Network – Krembil Research Institute: PhD Salary Award
Dr. Shabana Ali, University Health Network – Krembil Research Institute: Postdoctoral Fellowship
Dr. Vidyanand Anaparti, University of Manitoba: Postdoctoral Fellowship
Dr. Jasmin Ma, University of British Columbia – Arthritis Research Canada: Postdoctoral Fellowship
CRA (CIORA)-AS Clinician Investigator Award
There are 76 programs across Canada.
Roh question #2: What are childhood indicators of arthritis development?
A.- Mobility issues, redness and swelling of joints, Doctor tests such as blood work for inflammatory arthritis, X-rays for osteoarthritis.
8.- Ed Thompson wondered if past physical injury would make an individual more prone to the development of arthritis?
A.- Yes, it can precipitate the onset of osteoarthritis.
9.- Chuck Crocker asked if there was a viral component to the development of arthritis.
A.- Not sure of this, only research will tell over time.
Please remember, arthritis is not an old person’s disease. Most people develop symptoms during their working years. Thank you.
Bill Johnson thanked Mia Dunn for her very informative presentation. She was advised that a donation in her name would be made to ShelterBox.